Educational & Patient Outreach

Educational & Patient Outreach

Patient Outreach

The San Diego Muscle Research Center is primarily aimed at providing San Diego based muscle researchers with administrative, scientific and financial support. However, the SDMRC regularly teams up with patient organizations like CureDuchenne or Parent Project Muscular Dystrophy (PPMD) to educate patient families about latest developments in muscle research, and educate the next generation of scientists.



World Duchenne Awareness Day

September 7 was World Duchenne Awareness Day. Several patient organizations concentrated their efforts to raise awareness and organize educational programs. Support and awareness was raised by bying a virtual Duchenne Balloon.
More information on the World Duchenne Awareness Day can be found here.



Development of treatments for Duchenne and other muscular dystrophies

Parent Project Muscular Dystrophy regularly updates information on clinical trials and their outcomes.

Educational seminars

Here are links to patient outreach events organized by CureDuchenne and PPMD.

Organization Events
CureDuchenne upcoming events
PPMD upcoming events




SDMRC Patient Outreach Seminar - CureDuchenne Cares

June 5-6, 2015.

Cure Duchenne in collaboration with SDMRC was hosting a series of free seminars and workshops in the beginning of June 2015 for therapists and patient families. The Duchenne Therapy Network (DTN) is dedicated to extending education to healthcare professionals and families of those with Duchenne muscular dystrophy. DTN as part of the CureDuchenne Cares team offers several classes throughout the year and throughout the U.S.

Program


Friday, June 5th
9:00 a.m. – 5:00 p.m.
DUCHENNE MUSCULAR DYSTROPHY:
CURRENT UNDERSTANDING AND TREATMENT

Improve treatment and outcomes for your clients with Duchenne Muscular Dystrophy
Seminar for healthcare specialists and therapists.
More information & registration
Saturday, June 6th
8:00 a.m. – 12 p.m. Scientific Session
1p.m. – 4p.m. WORKSHOP For Duchenne Families
More information and reserve your seat.


Pictures

Here are some impressions of the first SDMRC supported CureDuchenne Workshop.
More pictures can be found on the CureDuchenne Cares Facebook Page.

Adam Engler
Adam Engler




SDMRC Scientists in the news.

See a collection of news articles on SDMRC supported scientists here.


More coming soon.